Learning the facts about Lennox-Gastaut syndrome (LGS) may help others to better understand your loved one's condition.
Trust is at the top of the list of qualities caregivers say they look for in a healthcare team. Find out what else matters.
As your child with LGS transitions to adulthood, there are practical considerations to help your family prepare.
Knowing how to handle a seizure is a must for caregivers of those living with LGS. It starts with understanding the basics.
The first step in forming a collaborative relationship with your healthcare team is finding the right people to collaborate with.
For LGS families, a diagnosis can provide answers and a place to begin planning for the future.
LGS often looks different in children and adults. Knowing how the condition changes over time may help adults get a diagnosis.
Learn the facts about Lennox-Gastaut syndrome (LGS) to help you understand your child’s LGS diagnosis.
Healthcare appointments may be opportunities to learn, so being prepared is worth the effort.
Do you want to infuse more smiles into your LGS journey? Caregivers often recommend holding little celebrations along the way.
Being an advocate for a loved one with LGS is a role parents, siblings, and families are embracing with a sense of purpose.
Caregivers have told us that the process of hiring someone you can trust to care for your child with LGS isn't always easy, but is worth the preparation and patience.
Hear how one mother learned to speak on behalf of her daughter who has LGS.
A sense of humor can ease the challenges and stress of caring for a loved one with LGS.
See how Lennox-Gastaut syndrome has made one mom want to be her daughter’s superhero.
From building support and planning ahead to finding strength, families learn different ways to adapt to life with LGS.
Writing a letter to another parent to explain LGS and the special needs your child has is an effective way to build support at school.
The impact of LGS is different for fathers. Get advice, dad-to-dad, about living with LGS.
Sharing accomplishments or "inchstones" of your LGS loved one is a source of great pride for many caregivers.
Connecting online with other LGS families is a great way to find ongoing support.
Take the time to get to know your way around the social media landscape to discover its power in raising LGS awareness.
The LGS Foundation’s annual conference offers updates on the latest research and an opportunity to meet other LGS families.
Hearing the lessons that other caregivers have learned may provide insights for improving your approach to LGS challenges.
Forming connections with other families who live with LGS introduces a whole new world of possibilities.
Caregivers are learning about LGS and turning that knowledge into awareness for the greater community.
Need to educate a new caregiver or teacher about your loved one with LGS? This tool kit has resources that will help you tell your story.
One caregiver shares her experience in pushing past her fear of getting out in the community with her daughter who has LGS.
Do your homework to find the best approach to school for your child with LGS.