I Have a Voice
Being an advocate for a loved one with Lennox-Gastaut syndrome (LGS) is a role parents, siblings, and families are embracing with a sense of purpose.
Read these tips about how to be the best advocate for your loved one with LGS.
LGS caregivers share what they've learned and what they wish they'd known at the beginning of their journey.
Hear one mom talk about how she helped her daughter remove the stigma around wearing her helmet.
Read how some caregivers have found a way to navigate life with LGS with love and laughter.
Safety is an important concern when caring for a loved one with LGS. See what other caregivers shared as their top safety tips.
A sense of humor can ease the challenges and stress of caring for a loved one with LGS.
Writing a letter to another parent to explain LGS and the special needs your child has is an effective way to build support at school.
Caregivers have told us that the process of hiring someone you can trust to care for your child with LGS isn't always easy, but is worth the preparation and patience.
Hear how one mother learned to speak on behalf of her daughter who has LGS.
One caregiver learned to speak up for her daughter's LGS needs in a way that left her feeling like a superhero.
Do you want to infuse more smiles into your LGS journey? Caregivers often recommend holding little celebrations along the way.
Sharing accomplishments or "inchstones" of your LGS loved one is a source of great pride for many caregivers.
Being an advocate for a loved one with LGS is a role parents, siblings, and family are embracing with a sense of purpose.
From building support and planning ahead to finding strength, families learn different ways to adapt to life with LGS.