Being the Voice of My Loved One With Lennox-Gastaut Syndrome (LGS)

“I know her the best and have confidence in my ability to speak for her.”

– Elizabeth, mother of young daughter Spencer

Your LGS Voice

You’ve probably learned, early on, that there are times when you have to speak up on behalf of your loved one with LGS. But just as LGS continues to change over time, so, too, does your role as a parent advocate. Making adjustments along the way can help you meet new challenges as they come up. While not always easy, it’s heartening to see how your efforts can—and do—make a difference.

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