I Have a Voice
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“I would never have described myself as an advocate. But somebody had to become Theo’s voice.”
– Jennifer, mother of teenage son Theo
Lennox Gastaut Syndrome (LGS) Advocates
You’ve likely experienced setbacks, disappointments, and frustration—and hopefully moments of joy and accomplishment, too. You understand, better than anyone, what your loved one with LGS is going through and likely have learned to become his or her voice.
Develop Your Voice
Take advantage of the LGS Educating Others Tool Kit to put together a personalized LGS educational presentation in your community.
HEAR FROM LGS FAMILIES
Get caregiver tips and hear inspiring stories at Caregiver Corner.
Learn more
Get social with our LGS Together online family.
Find support through open conversations.