“There’s a time as a father where you have to realize that there are things you’re not going to be able to do. It doesn’t mean that you can’t try to do new things—whether it’s ride a bike or play basketball or go for a ride or go for a hike, whatever it might be—but you need to let your son or your daughter with LGS show you the way.”
– Jeff, father of adult son Dan
Although no two fathers react to their child’s LGS diagnosis in the same way, one thing is certain: their emotions—denial, anger, grief, or others—are powerful. In fact, research suggests that fathers are affected deeply. However, with time and understanding, some fathers have been able to regain a sense of control.
Fathers dealing with an LGS diagnosis have shared the following advice: