Children with Lennox-Gastaut syndrome (LGS) can have a difficult time in school settings; however, caregivers have shared with us how they work with their loved one’s school to help ensure that he or she has the best experience possible.
School can be a positive experience for both you and your loved one if you work together with educators to find the best approach.
You can start by explaining the severity of LGS to your loved one’s teachers and how it may affect your child’s performance in school. Depending on your child’s intellectual and physical limitations, describe what teachers might expect and how to best address these issues. For example, you might explain that in addition to frequent seizures, your child may also have cognitive problems, attention issues, or display aggressive behavior. Be sure to emphasize that these issues are due to your child’s condition and are often beyond their control.
The Individuals with Disabilities Education Act helps ensure that all children receive a public education regardless of the severity of their disability and will have an individualized education plan (IEP). An IEP helps teachers and parents outline appropriate educational goals and services that are geared specifically to each child's needs. The IEP is considered a legal document for teachers and staff to follow, and it is reviewed each year to ensure that it continues to meet your child's needs.
Working together with teachers and other members of your school district, you need to decide what special education and related services your child needs. Here are some tips to help make the best decision for your child.