Making the Most of Your Child’s School Experience

Children with Lennox-Gastaut syndrome (LGS) can have a difficult time in school settings; however, caregivers have shared with us how they work with their loved one’s school to help ensure that he or she has the best experience possible.

Your Homework 

School can be a positive experience for both you and your loved one if you work together with educators to find the best approach. 

What to Say

You can start by explaining the severity of LGS to your loved one’s teachers and how it may affect your child’s performance in school. Depending on your child’s intellectual and physical limitations, describe what teachers might expect and how to best address these issues. For example, you might explain that in addition to frequent seizures, your child may also have cognitive problems, attention issues, or display aggressive behavior. Be sure to emphasize that these issues are due to your child’s condition and are often beyond their control.

What to Do

The Individuals with Disabilities Education Act helps ensure that all children receive a public education regardless of the severity of their disability and will have an individualized education plan (IEP). An IEP helps teachers and parents outline appropriate educational goals and services that are geared specifically to each child's needs. The IEP is considered a legal document for teachers and staff to follow, and it is reviewed each year to ensure that it continues to meet your child's needs.

How to Create an Effective IEP

Working together with teachers and other members of your school district, you need to decide what special education and related services your child needs. Here are some tips to help make the best decision for your child.

  1. Base it on careful evaluation. Generally, your IEP team should begin by looking at your child’s evaluation results, such as individual tests given to establish eligibility, as well as observations by teachers, school administrators, and others. This information will help the team develop annual goals to address those areas where the student has an identified need
  2. Know your child's rights. Check books out at the library, attend local support groups, or go online to websites such as the LGS Foundation and the National Center for Learning Disabilities
  3. Make it results oriented and time sensitive. Your child's IEP should state measureable goals. A combination of measures will best document your child's progress and show if the special services are meeting your child's needs


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