Moms and dads who are doing their best to care for a child with special needs have a lot to offer others. Parents of children with LGS weighed in to offer a few tips based on what they’ve learned along the way.
"My role, I guess, if you could call it that, would be to be there for my wife, Jane, to give her the break because it becomes overwhelming. I have to be able to be there and have Micaela for a period of time to let her have some time to do something else."
– Mark, father of adult daughter Micaela
"I think you need to have time to recharge your battery to come back to your child with special needs. I would never presume to tell anyone how they should live their life, but I do know from my own experience that I can help Theo best and be around Theo when I’ve rested and I’ve taken care of myself to make sure that I’m there to give him all the attention."
– Alex, father of teenage son Theo
"To keep sane, for myself, I like to go out with my girlfriends. I like to go grab a cup of coffee, or maybe go out to dinner with them, or even go for a walk. You need that time to regroup and come back full of energy to tend to your loved one with LGS."
– Kelly, mother of young daughter Isabela
"We have to stay strong as a couple to make sure that we stay strong as a family and support Dan. So Jeff and I set aside time for ourselves where we go to a movie or a sporting event or something we both enjoy. We prioritize time together as part of what we need to do to be able to maintain our relationship and have fun."
- Karen, mother of adult son Dan
"A positive attitude is a big thing. You have to continue to go on with life and continue to do the things you want to do."
– Rachel, mother of teenage son Andrew
"We learned to slow down and listen to what Elizabeth had to say because what she had to say was important, too."
– Lucinda, mother of teenage daughter Elizabeth
"We don't worry so much about what's going to happen next because we've handled so much in the last 9 years that we can handle anything."
– Elizabeth, mother of young daughter Spencer