"I like to take advantage of every opportunity we have to teach our family and friends about Isabela’s condition."
– Kelly, mother of young daughter Isabela
Being a parent advocate often begins on a very personal level and evolves over time. Early on, it can be everything from seeking information about your loved one’s LGS diagnosis, to learning how to ask the right questions and finding resources for support. For many caregivers, being an advocate for their child is often the difference between feeling lost and having the strength to move forward.
The LGS Educating Others Tool Kit is a step-by-step resource to help you walk through the steps of customizing an educational event in your community.