Handling Seizures

"I learned that if you just stay by her side, reassure her, and tell her 'everything is fine, it's gonna be ok, it’s almost over, you're doing really good, just hang in there' and you keep your voice very calm and loving and hold her hand—don't try to stop the seizures or hold her down or anything—that will help her get through it."

– Jane, mother of adult daughter Micaela

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For those who are unfamiliar with Lennox-Gastaut syndrome (LGS) or other forms of epilepsy, seeing someone experience a seizure can be frightening. By talking openly and honestly about seizures, you can help others in your loved one’s life understand what to do when a seizure occurs. Teach others what to expect if they see your child having a seizure so they can respond appropriately. 

"When my mom started watching Isabela, I gave her a little rundown of what to expect. I had a video to show her what a bad seizure would look like so she would know. I also told her what to do if she had a really bad seizure.”

– Kelly, mother of young daughter Isabela

Responding to Seizures

The first line of response to a seizure should be to provide general care and comfort to keep your child safe.

  • Stay calm. There is very little you can do when someone is having a seizure. Don’t try to stop any movements or tongue biting
  • Prevent injury. Move anything that could hurt the child. Put a pillow or something soft under the child’s head. If you can, gently turn the child to one side to prevent choking
  • Call 911.
    • If the seizure lasts more than 5 minutes
    • If the child is seriously hurt
    • If the child takes longer than usual to wake up after the seizure
    • If the child is not breathing after the seizure (begin artificial respiration or CPR)
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