“With a diagnosis of LGS, we were finally able to look at the signs and symptoms, and it all clicked. Now we better understand why she’s having these problems.”
– Mark, father of adult daughter Micaela
You’ve watched, with heart racing, as your child endures another seizure—a flood of unanswered questions swirling through your mind.
Different types of seizures and developmental delays may be related to a rare type of epilepsy called Lennox-Gastaut syndrome (LGS). Because LGS is rare, some doctors may not be familiar with it. And since LGS changes over time, symptoms may go unrecognized with the transition to adulthood. As a result, a person may live with LGS for a number of years before being diagnosed.