5 Tips: Get the Most From Healthcare Visits

"For me, I get the most out of my appointments if I write down what I want to ask before I get there. If you have it all written down, you leave knowing that you had all your questions answered."

– Lucinda, mother of teenage daughter Elizabeth

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A routine doctor’s visit can be an important opportunity to connect with your Lennox-Gastaut syndrome (LGS) healthcare team and gain insight into your loved one’s overall health and well-being. To make the most of each appointment, fellow caregivers have shared the following tips:

  1. Schedule. If you have the flexibility, try to schedule your appointment on a day and time that your doctor’s office isn’t as busy. It may be less overwhelming to your loved one to avoid potential chaos in the waiting room and may lower the chances of your doctor running behind schedule. Slower days may also offer the opportunity for longer appointments if your loved one needs additional time to warm up or get comfortable with your doctor
  2. Prepare. Plan ahead for what you want to accomplish during your appointment. Take a moment to write down the questions you want to ask and any concerns you may have. Doing this beforehand helps ensure that nothing is missed. It's also important to prepare your loved one for what is likely to happen during the visit. Free downloadable apps for children with special needs that can help your loved one learn to navigate potentially challenging situations are available
  3. Relax. Try to avoid rushing to your appointment, so you and your loved one are not stressed or agitated coming into the office. A calming or relaxing activity beforehand, like reading a book or listening to music, may help
  4. Distract.  Be sure to bring something for your loved one to read or play with—a favorite book, iPad, or toy—that can provide some comfort or distraction in the waiting room, when the doctor is completing his or her exam, or while you are talking to the doctor. Bringing a friend or relative with you to the appointment can also help
  5. Reward.  Make trips to the doctor something to look forward to. Plan a reward or special activity after the appointment to celebrate a successful trip
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