Making ongoing adjustments to your life becomes second nature for LGS families. But, the transition from childhood to adulthood requires some planning to make it as seamless as possible.
Nearly 55% of caregivers surveyed by the LGS Foundation felt they were not prepared in planning for their loved one’s future.
Adulthood brings about the need to switch from your trusted pediatric neurologist to an adult neurologist. Be sure to ask:
Your pediatric neurologist should be able to refer you to an appropriate adult neurologist. If you need additional help, visit the National Association of Epilepsy Centers.
By obtaining legal guardianship of your loved one when he or she turns 18, you will continue to have the ability to legally make decisions that are in his or her best interest. Remember to ask:
For more information, visit USA.gov.
When planning for future financial needs, ask:
After finishing school, many meaningful opportunities exist for adults with special needs. When considering the transition to adulthood, ask:
Learn more at the National Adult Day Services Association and the US Department of Education State Vocational Rehabilitation Agency.
At some point, the time may come for you to consider who will continue to care for your loved one. When making residential decisions, ask:
Learn more at Independent Living Institute.